The Center for Genomic Interpretation is an independent 501(c)(3) nonprofit organization with the mission to save and improve lives through facilitating careful stewardship of clinical genetics, genomics and precision medicine. In 2021 and 2022, public fundraising campaigns are focused on Project Heritage.

Your tax-deductible donations provide critical funding to continue various initiatives in patient care, student training, and production of free education content. 

Frequently Asked Questions About Project Heritage

𝗪𝗵𝗮𝘁, 𝗪𝗵𝘆, 𝗛𝗼𝘄?

Due to advances in ultrasound technology and clinical genetics, babies are increasingly being diagnosed with disabilities in utero. Misunderstandings and fear about raising a child with special needs leads many expecting parents to choose abortion. For example, approximately 67% of diagnosed Down syndrome pregnancies in the USA result in elective abortion. Project Heritage aims to use targeted outreach campaigns to find and educate pregnant mothers who have recently received a diagnosis of disability for their unborn child. We aim to educate about disability, reduce the fear of raising a child who is disabled, and encourage and facilitate adoption for those that feel they cannot raise a child with special needs.

𝗪𝗵𝗮𝘁 𝗧𝘆𝗽𝗲𝘀 𝗼𝗳 𝗗𝗶𝘀𝗼𝗿𝗱𝗲𝗿𝘀 𝗮𝗿𝗲 𝗗𝗶𝗮𝗴𝗻𝗼𝘀𝗲𝗱 𝗜𝗻 𝗨𝘁𝗲𝗿𝗼?

There are many different genetic or developmental disorders that can be diagnosed in utero by genetics and/or ultrasound. These include Trisomy 21 (𝗗𝗼𝘄𝗻 𝘀𝘆𝗻𝗱𝗿𝗼𝗺𝗲), Trisomy 18 (Edward’s syndrome), Trisomy 13 (Patau syndrome), XXX (Triple X syndrome, trisomy X or 47,XXX), XXY (Klinefelter syndrome), XYY (47,XYY syndrome), Monosomy X (Turner syndrome), Triploidy 22q11.2 deletion syndrome, 1p36 deletion syndrome, 15q (Prader-Willi syndrome), 15q (Angelman syndrome), 11q (Jacobsen syndrome), 5p (Cri-du-chat syndrome), 4p (Wolf-Hirschhorn syndrome), 𝗖𝘆𝘀𝘁𝗶𝗰 𝗳𝗶𝗯𝗿𝗼𝘀𝗶𝘀, Duchenne muscular dystrophy, Hemophilia A, Polycistic kidney disease, Tay-Sachs disease, Thalassemia, and 𝗦𝗽𝗶𝗻𝗮 𝗯𝗶𝗳𝗶𝗱𝗮.

𝗛𝗼𝘄 𝗪𝗶𝗹𝗹 𝗗𝗼𝗻𝗮𝘁𝗲𝗱 𝗙𝘂𝗻𝗱𝘀 𝗯𝗲 𝗨𝘀𝗲𝗱?

Project Heritage provides completely free services to expecting mothers in need. Therefore funds are used to cover the expense of work provided by licensed and certified genetic counselors, adoption consultants who are expert in medically complex adoptions, doctoral level genetic variant classification experts as well as project managers. A HIPAA compliant and secure digital infrastructure is also maintained to ensure the privacy of participants. The Project Heritage website is maintained and continuously optimized to educate and assist expecting parents in need of services. Also, in order to find those who need help, online marketing professionals are used. Some online marketing is donated by companies (eg. by Google), but others must be paid for (eg. FaceBook/Meta and pregnancy websites). Additionally, printed education materials are generated and distributed to OB-GYNs and midwives at professional conferences and through the mail.

𝗛𝗼𝘄 𝗶𝘀 𝗣𝗿𝗼𝗷𝗲𝗰𝘁 𝗛𝗲𝗿𝗶𝘁𝗮𝗴𝗲 𝗙𝘂𝗻𝗱𝗲𝗱 𝗡𝗼𝘄?

Donations of any amount to Project Heritage from the public or from foundations are gratefully received. A variety of donation methods are accepted by CGI. Project Heritage is also helped along by volunteers, most of whom are college students.

With gratitude, the Center for Genomic Interpretation (CGI) received its first grant for Project Heritage in 2020 from 𝗧𝗵𝗲 𝗔𝗻𝘁𝗶𝗼𝗰𝗵 𝗙𝗼𝘂𝗻𝗱𝗮𝘁𝗶𝗼𝗻. 𝗣𝗿𝗶𝘃𝗮𝘁𝗲 𝗱𝗼𝗻𝗼𝗿𝘀 in 2021, as well as a grant from 𝗧𝗵𝗲 𝗖𝗵𝘂𝗿𝗰𝗵 𝗼𝗳 𝗝𝗲𝘀𝘂𝘀 𝗖𝗵𝗿𝗶𝘀𝘁 𝗼𝗳 𝗟𝗮𝘁𝘁𝗲𝗿-𝗱𝗮𝘆 𝗦𝗮𝗶𝗻𝘁𝘀 (Latter-day Saint Charities) has allowed Project Heritage to continue. To reach pregnant women in need, the Center for Genomic Interpretation also leverages a monthly in-kind nonprofit 𝗚𝗼𝗼𝗴𝗹𝗲 𝗔𝗱 𝗚𝗿𝗮𝗻𝘁. In addition, the Center for Genomic Interpretation directs some of the funds it generates from revenue generating services to Project Heritage. (Visit https://www.genomicinterpretation.org/ to learn how CGI generates revenue through providing key services to precision medicine stakeholders).

𝗜𝘀 𝗣𝗿𝗼𝗷𝗲𝗰𝘁 𝗛𝗲𝗿𝗶𝘁𝗮𝗴𝗲 𝗘𝗻𝗴𝗮𝗴𝗲𝗱 𝗜𝗻 𝗣𝗼𝗹𝗶𝘁𝗶𝗰𝘀?

𝗡𝗼. Project Heritage does not work to alter law in the USA.

𝗜𝘀 𝗖𝗲𝗻𝘁𝗲𝗿 𝗳𝗼𝗿 𝗚𝗲𝗻𝗼𝗺𝗶𝗰 𝗜𝗻𝘁𝗲𝗿𝗽𝗿𝗲𝘁𝗮𝘁𝗶𝗼𝗻 𝗮 𝗧𝗿𝗮𝗻𝘀𝗽𝗮𝗿𝗲𝗻𝘁 𝗡𝗼𝗻𝗽𝗿𝗼𝗳𝗶𝘁 𝗪𝗶𝘁𝗵 𝗚𝗼𝗼𝗱 𝗙𝗶𝗻𝗮𝗻𝗰𝗶𝗮𝗹 𝗦𝘁𝗲𝘄𝗮𝗿𝗱𝘀𝗵𝗶𝗽?

𝗬𝗲𝘀. The Center for Genomic Interpretation (CGI) is an independent 501(c)(3) nonprofit organization, founded in 2017. Headquartered in Sandy, Utah, CGI provides services across the United States. CGI maintains a Platinum Seal of Transparency from GuideStar, and CGI’s Board of Directors provides guidance and careful oversight to ensure excellent financial stewardship. Taxes are prepared by a professional accounting firm, and are periodically independently audited. Form 990s and nonprofit reports are publicly accessible at GuideStar https://www.guidestar.org/profile/82-0918164 or upon request.

𝗪𝗵𝗲𝗿𝗲 𝗖𝗮𝗻 𝗜 𝗟𝗲𝗮𝗿𝗻 𝗠𝗼𝗿𝗲?

The Project Heritage website for expecting parents is found here:

https://www.clarifygenetics.org/project-heritage/

The nonprofit Adopting Joy Consulting assists the Center for Genomic Interpretation in Project Heritage. Their website is found here:

https://www.adoptjoy.org/

Project Heritage is a public outreach initiative of the Center for Genomic Interpretation (CGI). For CGI’s other activities aimed at stakeholders in precision medicine, please visit this website:

https://www.genomicinterpretation.org/

𝗖𝗮𝗻 𝗜 𝗖𝗼𝗻𝘁𝗮𝗰𝘁 𝗖𝗚𝗜 𝗧𝗼 𝗟𝗲𝗮𝗿𝗻 𝗠𝗼𝗿𝗲 𝗔𝗯𝗼𝘂𝘁 𝗣𝗿𝗼𝗷𝗲𝗰𝘁 𝗛𝗲𝗿𝗶𝘁𝗮𝗴𝗲 𝗕𝗲𝗳𝗼𝗿𝗲 𝗜 𝗗𝗼𝗻𝗮𝘁𝗲?

Yes. Our email address is contact@genomicinterpretation.org and phone number is 801-810-4097.